We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry and related lysosomal conditions in the UK.
The MPS Society’s Support and Advocacy Team is at the core of everything the charity delivers.
Through medical research and clinical trials we help find innovative ways to cope with living with the conditions.
We invite you to celebrate our awareness events, share your stories and spread the word.
This meeting brought together a diverse group of experts to advance our understanding and treatment of MPS conditions and to highlight the importance of integrating biomarkers into regulatory frameworks. Take a second look at the recorded presentations.
When you or your child has been diagnosed with MPS, Fabry or a related lysosomal condition it can be a very worrying and isolating time.
Running, stepping, awareness days and talks, as well as more pub quizzes! Sit back and enjoy our latest edition of our fundraising blog!
