We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry and related lysosomal conditions in the UK.
The MPS Society’s Support and Advocacy Team is at the core of everything the charity delivers.
Through medical research and clinical trials we help find innovative ways to cope with living with the conditions.
We invite you to celebrate our awareness events, share your stories and spread the word.
When you or your child has been diagnosed with MPS, Fabry or a related lysosomal condition it can be a very worrying and isolating time.
It's been another busy month in which the MPS Society team actively represented you and educated professionals across the UK. Read more about our contributions to the MLD Conference, LINK Meeting, Family Screening Project and more.
