![Trampolines and buildings seen through a play park tunnel.](/img/asset/aW1hZ2VzL2V2ZW50c19pbWFnZXMvaW1nXzQyMTYuanBn/img_4216.jpg?w=1024&h=682.66666666667&fit=crop&q=85&s=0461df5dd278c38aaa50bf0b86147fa5)
Worminghall (near Oxford)
Family event at Thomley Activity Centre
Inviting our families for a get together at Thomley, a specialist venue for people of all abilities and disabilities.
Find out moreWe are the only registered charity providing professional support to individuals and families affected by MPS, Fabry and related lysosomal conditions in the UK.
The MPS Society’s Support and Advocacy Team is at the core of everything the charity delivers.
Through medical research and clinical trials we help find innovative ways to cope with living with the conditions.
We invite you to celebrate our awareness events, share your stories and spread the word.
When you or your child has been diagnosed with MPS, Fabry or a related lysosomal condition it can be a very worrying and isolating time.
Despite best efforts, NICE was unable to make a recommendation for the use of sebelipase alfa in LAL-D patients with non-Wolman disease.