Meet the CEO
Bob Stevens has been Group CEO of the MPS Society since 2017. He also holds various other roles, both in the UK and globally, representing the voice of our rare disease community.
Transforming lives through support, research and awareness
We are the only registered charity providing professional support to individuals and families affected by MPS, Fabry and related lysosomal conditions in the UK.
Support
The MPS Society’s Support and Advocacy Team is at the core of everything the charity delivers.
Research
Through medical research and clinical trials we help find innovative ways to cope with living with the conditions.
Awareness
We invite you to celebrate our awareness events, share your stories and spread the word.
New Christmas cards
Spread some festive cheer! Our brand-new Christmas card collection has just dropped in the MPS Society shop. Pick up your favourites while stocks last! There’s something for everyone.
Get support
When you or your child has been diagnosed with MPS, Fabry or a related lysosomal condition it can be a very worrying and isolating time.
Latest from MPS Society
Blog
World Orphan Drug Congress Europe 2025
The World Orphan Drug Congress (WODC) is dedicated to advancing the development and delivery of treatments for rare diseases. It brings together industry leaders, researchers, policymakers, patient advocates and biotech innovators.
