We want to give you the tools to be able to learn about MPS, Fabry and related diseases in order for children with the condition to receive a faster diagnosis.
Professionals
Learn about Fabry disease
Discover the newly-developed Fabry disease online learning platform. Written and developed by Professor Derralynn Hughes, the platform offers professionals in-depth knowledge of Fabry disease.
Funding opportunities
CSAC
Our Clinical Scientific Advisory Committee (CSAC) consists of members of our Board of Trustees and the Society’s Patient Advocacy team who will consider research applications each year.
Memorial Fund
As part of the MPS Society’s 40th anniversary, we launched the Christine Lavery Memorial Fund for summer vacation studentships in memory of our founder to provide funding for two studentships for undergraduates.
Research grants
The MPS Society is inviting applications for research grants in MPS, Fabry and related diseases. We are currently inviting research applications on the theme of psychological wellbeing.
Apply for a research grant
Closing date 25 April 2026
Grant applications for scientific and clinical research on lysosomal diseases are now open. We invite proposals for innovative and impactful projects into MPS, Fabry and related conditions. This year’s total funding pot is £100,000 so please ensure that your proposed project budgets reflect this overall limit.
Sign up for updates
Want to hear more about our work with professionals, our expert meetings and new resources as they become available? Join our email list for updates.
Find out about the conditions
We’ve got a wealth of information about each of our conditions.
What are Mucopolysaccharide (MPS) diseases?
Mucopolysaccharide (MPS) diseases are a family of rare, life limiting lysosomal storage disorders that can affect both children and adults.
What is Fabry?
Fabry disease is closely related to mucopolysaccharidoses and is one of the lysosomal storage diseases.
Related diseases
The MPS Society supports 25 MPS and related diseases including the Mucolipidoses, other ‘storage diseases’ and the following conditions which are similar to Mucopolysaccharide Diseases.
Resources for professionals
CSAC Open Day 2026
Catch up on the 2026 CSAC Open Day when Dr Fiona Stewart and Prof Derralynn Hughes were in conversation with researchers to discover the stories projects funded by CSAC.
Arabella's guide to hospital stays
Based on her own experience, MPS Society member Emily shares a list of items to include on your packing list and thoughtful tips to make your hospital stay more comfortable and less stressful.
MPS Matters 2025: insights and impact
This report highlights the impact of the MPS Matters community weekend 2025 and presents the results of the various data collections carried out.