April is Fabry Awareness Month!
This year, we have some interesting insights from Fabry Matters to share with you. Keep an eye on our social channels and remember to share these with your contacts to spread awareness about Fabry disease.
​How to get involved
Get social and help us raise awareness of life with Fabry disease by sharing our posts and stories on your social channels. Follow us on Facebook and Instagram and use #FabryAwareness #WhatIsFabry when you repost. Let's get everyone talking about Fabry disease!
You can also help us support those living with Fabry disease by making a donation. Our members face so many challenges because of their symptoms and we are here to make life as easy as possible so they can live life to their full potential.​
Together we will open up and start a conversation about Fabry disease.
Does your doctor know about Fabry?
We’ve launched a new Fabry education tool for professionals and we need you to share it with the healthcare professionals you have contact with. Download our handy postcard about this FREE tool and send it to your GP, clinician or specialist so they can learn more about Fabry and hopefully share with their colleagues. Or ask us for copies you can post.
Read your stories
Story
Living with Fabry
This Fabry Awareness Month, we are featuring a range of articles from guest bloggers describing their relationship with Fabry disease.
29/03/2023
Blog
Living with Fabry: Loretta's story - Fabry Awareness Month
This Fabry Awareness Month, we are featuring a range of articles from guest bloggers describing their relationship with Fabry disease....
28/04/2022
Blog
Living with Fabry: Naomi's story - Fabry Awareness Month
This Fabry Awareness Month, we are featuring a range of articles from guest bloggers describing their relationship with Fabry disease....
14/04/2022
Find more resources
My Fabry treatment: a guide to empower and inform Fabry patients on their treatment journey
This guide is for patients with Fabry disease. It explains the structure of care you may receive at your specialist centre.
Living with Fabry disease - David Moreno-Martinez
Dr Moreno-Martinez talks about living with Fabry disease and what it means to navigate a rare genetic condition at Fabry Matters Conference 2024.
Understanding Fabry disease
We know that being diagnosed with a rare disease is life-changing and you can struggle to come to terms with it. Therefore, we have...