The MPS Society provides support to families affected by one of 27 rare, life limiting genetic conditions. We want all affected children and adults to know where to turn for specialist knowledge, support and advice.
About us
The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by MPS, Fabry and related diseases. These diseases are rare or ultra-rare and are both progressive and life limiting. Through our highly dedicated team we offer support throughout the UK that both informs and empowers the community we serve and that raises awareness of this disease group to a wider audience both nationally and internationally.
We offer flexibility in working hours, 5 weeks annual leave (increasing after 5 years service), extra leave between Christmas and New Year, enhanced pension contributions (5%), life assurance cover (subject to the conditions of the scheme), free on-site parking and an Employee Assistance Programme.
Our privacy notice for job applicants
In accordance with the UK General Data Protection Regulation (UK GDPR), the MPS Society have implemented this privacy notice to inform you, as prospective employees of our Company, of the types of data we process about you. We also include within this notice the reasons for processing your data, the lawful basis that permits us to process it, how long we keep your data for and your rights regarding your data.
Current vacancy
Chief Executive Officer
An exciting opportunity
This is a rare and genuinely exciting opportunity to lead the UK's only dedicated charity supporting children, adults and families affected by MPS, Fabry and related lysosomal storage conditions. The incoming CEO will take the helm of an organisation with over 40 years of history, a trusted national reputation and a growing role on the international rare disease stage.
The successful candidate will shape the strategic vision for more than 1,800 families, oversee the close partnership between the Society and its research subsidiary RDRP, and champion the patient and family ethos that sits at the heart of the organisation's work.
It is an opportunity to combine ambitious strategic leadership with deeply meaningful, human impact, working alongside a committed Board, Senior Leadership Team and wider community of clinicians, researchers and pharmaceutical partners.
Application
Applications should be made to hr@mpssociety.org.uk
Please include your CV with a supporting statement of no more than 800 words. Your supporting statement should include an answer to the question below:
The MPS Society supports individuals and families affected by mucopolysaccharidoses (MPS) and related disorders. What interests you about coming to work in this area, and what motivates you to contribute to supporting individuals and families affected by these conditions?