The MPS Society provides support to families affected by one of 27 rare, life limiting genetic conditions. We want all affected children and adults to know where to turn for specialist knowledge, support and advice.
About us
The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by MPS, Fabry and related diseases. These diseases are rare or ultra-rare and are both progressive and life limiting. Through our highly dedicated team we offer support throughout the UK that both informs and empowers the community we serve and that raises awareness of this disease group to a wider audience both nationally and internationally.
We offer flexibility in working hours, 5 weeks annual leave (increasing after 5 years service), extra leave between Christmas and New Year, enhanced pension contributions (5%), life assurance cover (subject to the conditions of the scheme), free on-site parking and an Employee Assistance Programme.
Our privacy notice for job applicants
In accordance with the UK General Data Protection Regulation (UK GDPR), the MPS Society have implemented this privacy notice to inform you, as prospective employees of our Company, of the types of data we process about you. We also include within this notice the reasons for processing your data, the lawful basis that permits us to process it, how long we keep your data for and your rights regarding your data.
Current vacancies
We currently have an open vacancy in the Support and Communities Team. Please see further details and the full job descriptions below. Applications should be made to hr@mpssociety.org.uk. Please provide your CV and a covering letter explaining how your previous roles and experiences make you the candidate we are looking for.
Support & Advice Officer
We are expanding our Support team who raise awareness, provide information and practical guidance alongside support and advocacy relating to health and social care, housing, education, transition, independent living, palliative care, and bereavement. This team also contribute to the development of our resources and facilitate project work such as youth engagement, advisory boards, and support groups.
As a Support & Advice Officer you will provide administrative and initial frontline support. Training on MPS and related conditions will be provided. You will be required to develop a good understanding of MPS and related conditions, and the needs of those affected by these progressive, life-limiting conditions.