The MPS Society provides support to families affected by one of 27 rare, life limiting genetic conditions. We want all affected children and adults to know where to turn for specialist knowledge, support and advice.
About us
The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by MPS, Fabry and related diseases. These diseases are rare or ultra-rare and are both progressive and life limiting. Through our highly dedicated team we offer support throughout the UK that both informs and empowers the community we serve and that raises awareness of this disease group to a wider audience both nationally and internationally.
We offer flexibility in working hours, 5 weeks annual leave (increasing after 5 years service), extra leave between Christmas and New Year, enhanced pension contributions (5%), life assurance cover (subject to the conditions of the scheme), free on-site parking and an Employee Assistance Programme.
Our privacy notice for job applicants
In accordance with the UK General Data Protection Regulation (UK GDPR), the MPS Society have implemented this privacy notice to inform you, as prospective employees of our Company, of the types of data we process about you. We also include within this notice the reasons for processing your data, the lawful basis that permits us to process it, how long we keep your data for and your rights regarding your data.
Current vacancies
We have two open vacancies in the Support and Communities Team. Please see further details and the full job descriptions below. Applications should be made to hr@mpssociety.org.uk. Please provide your CV and a covering letter explaining how your previous roles and experiences make you the candidate we are looking for.
Head of Projects and Communities
This is a new and exciting role suitable for someone who is passionate about transforming the lives of those affected by our conditions and that of their families. You will need to have prior experience of effectively managing projects from initial research through to budgeting, delivery, review and further development.
You will be responsible for ensuring that all project requirements, schedules, deadlines and projects are on track and will also work closely with the Support Service to identify and respond to the needs of the communities we support.
Prior knowledge of MPS and related conditions is not required as in-depth support and training will be provided.
Head of Support
This is a rare opportunity to lead our Support team who provide direct support, practical guidance and other patient focused activities to over 1,500 members and their families, UK-wide.
The Support Team raise awareness both within the MPS community and external agencies, offering information, advice, support, and advocacy in a range of areas including health and social care, housing, education, transition, independent living, palliative care, and bereavement.
You will be working closely with the Projects and Communities team who contribute to the development of our resources and facilitate project work such as youth engagement, advisory boards, and support groups, as well as leading on support focused social media.
As Head of Support, you will exhibit strong leadership skills and have significant experience working within a health and social care or relevant field of work.
Prior knowledge of MPS and related conditions is not required as in-depth support and training will be provided.