See all the latest news, blogs and updates from the medical sector.
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Archie in Paris
In January, MPS Society member Archie travelled to Paris to share his story at the BioMarin Conference. Read about his trip and how well the interview was received.
19/02/2026
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Mel's story | Big Give Christmas Challenge 2025
Mel explains why the Independent Adult Weekend and meeting others face to face is so important, especially since she's transitioned to adult services.
18/11/2025
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Allison's story | Big Give Christmas Challenge 2025
For Allison, the annual Weekend of Remembrance and Hope each September is a profound source of comfort and connection. The weekend offers families a safe and supportive space to honour their loved ones alongside others who truly understand.
11/11/2025
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Emily's story | Big Give Christmas Challenge 2025
Emily shares why community events mean so much to our families, from feeling accepted and understood to enjoying a day out away from the everyday challenges and creating new friendships.
04/11/2025
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Starting treatment
Dave has recorded an insightful video to offer an insight into his first ever Fabrazyme infusion.
18/09/2025
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Don't give up on life when it gets tricky
Read about Olivia's remarkable journey from diagnosis, the challenging pursuit of treatment to fulfilling her ambition of becoming a teacher.
18/09/2025
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Scarlett's Active April challenge
We caught up with Scarlett who has been doing some amazing fundraising on behalf of her friend Luna.
21/08/2025
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Chat with Liz for International Fabry Women's Day
The first Saturday in April is International Fabry Women's Day and we had a lovely chat with Liz who has had a very recent diagnosis with Fabry.
05/04/2025
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BBC Children in Need’s Greatest Showman
If you followed last year’s BBC Children in Need programme, you simply couldn’t have missed Ethan who joined the One Show’s CIN Challenge Squad and starred as The Greatest Showman in the live show. Hear all about his incredible experience.
25/02/2025
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Strategically undervalued
Watch Gracie's powerful documentary on disability empowerment, raising awareness of her ultra-rare condition MPS IVA.
