See all the latest news, blogs and updates from the medical sector.
Together we can transform lives
Our amazing fundraiser have been super busy this summer. From boxing, skydiving, footy and superheroes, it's time to catch up on the latest fundraising round-up.
New children's book launches to save children like Leni
Little Leni has the most adorable laugh. She is curious, funny and full of energy! But Leni has a big struggle ahead of her. Every penny from this book, based on Leni's story, will help raise awareness of Childhood Dementia in the UK.
A new chapter for Sophie
Since recently stepping into the role of Interim CEO, Sophie Thomas reflects on her journey with the MPS Society so far and explains her commitment for her next chapter with the charity.
PPPN: working together
The PPPN is working together to improve care and outcomes for people living with Lysosomal Storage Disorders
Our response to the Timms Review of Personal Independence Payment (PIP)
The publication of the Timms Review marks an important moment in the future of Personal Independence Payment (PIP), with the review concluding that the current system is not fit for purpose.
Ambassador stories from the International MPS Symposium
Alison and Bethanie from the Patient Services Team were excited to be joined by our ambassadors Sam, Jacob and Helen in Florence. Together they reflect on their experience and share some core messages from the presentations they attended.
Reflections from Florence: connection, hope and a global community
As an ambassador for the MPS Society, Helen recently attended the International MPS Conference in Florence. Focussed on representing our community to the best of her abilities, Helen reflects on all the highlights of her trip.
Together we can transform lives
Check out our Awareness Week special, highlighting all our amazing supporters wearing it blue and raising funds for the MPS Society.
A special evening with the MPS Society
In celebration of MPS Awareness Week and Fabry Awareness Month, we hosted a special evening in London focused on the future for those living with MPS, Fabry and related conditions.
The power of volunteering
Ria, Ahmed, Helen and Keshini share their motivations for volunteering with the MPS Society.