See all the latest news, blogs and updates from the medical sector.
Blog
"It's good to know I'm not alone": the value of our community spaces
Our online community spaces continue to grow, with more than 200 members in our WhatsApp communities and over 300 members in our Facebook community. We asked members about their experiences and the feedback was overwhelmingly positive.
21/05/2026
Blog
Equity and quality in rare conditions
Improving equity and quality of care for people living with rare conditions continues to be a key priority across health and care systems. It is encouraging to see organisations such as NICE developing clear quality standards for rare diseases.
23/04/2026
Blog
Together we can transform lives
Blue is the colour of our steely steppers all racing for rare. Head over to our fabulous fundraising blog to find out more!
23/04/2026
Blog
Together we can transform lives
A Christmas fayre, carol concert, Santa fun run and the Big Give, it can only be the latest fundraising round-up!
19/02/2026
Blog
Key presentation insights from WORLDSymposium 2026
Our teams from the MPS Society and RDRP were delighted to attend WORLDSymposium 2026 in San Diego. Catch up on the presentation highlights.
13/02/2026
Blog
This is our London Marathon #teamMPS
Meet our amazing team of runners who are currently training hard to take on the ultimate challenge, the 2026 TCS London Marathon.
21/01/2026
Blog
CSAC in 2025
CSAC is the MPS Society's Clinical Scientific Advisory Committee. Its chair Fiona Stewart looks back at an eventful year and talks about the exciting research projects the committee was able to support.
18/12/2025
Blog
Building a fitness brand: the motivation and challenges behind SabreFit
Sam, founder of SabreFit explains the inspiration behind his fitness clothing line and why he is donating his profits to the MPS Society this Christmas.
11/12/2025
Blog
Paddington wears it blue
For over 20 years, Snugburys have been building amazing straw sculptures in support of charity. In 2024, a giant 45ft straw Paddington Bear appeared in their field to raise awareness for the MPS Society.
01/12/2025
Blog
Why I’m fundraising for the MPS Society
Lianne has chosen the MPS Society as her charity for the year and is currently in the middle of a monthly schedule of challenging fundraising activities. She reflects on her achievements so far and why fundraising is so important to her.
