It's been an amazing MPS Awareness Week this year from bake sales, marathons, car boot sales, climbing the National Three Peaks to garden centre fundraisers and so much more. Have a read of our latest fundraising round-up!
Wear it Blue for Ethan Golf Day
A huge thank you to everyone who played in or donated in the 9th annual Wear it Blue for Ethan and the MPS Society Golf Day at the fantastic Faversham Golf Club and on their Just Giving page. An incredible 73 golfers took part, helping raise nearly £4,000 for the MPS Society in support of Ethan.
It capped off an incredible fortnight for Ethan as he experienced his first EDGA event at the London Club and also received an England Golf Trust Disability Pathway Grant to support his development in the game. A big thank you to everyone who supported, sponsored and contributed to making the day so special. Next year marks their 10th anniversary — and it will be even more special as it’ll be the first year Ethan takes part himself.
The National Three Peaks for Noah
A big MPS Society thank you to Shauna and Ste who took on the National Three Peaks challenge in memory of their son Noah. They have raised over £2,225 to help support families and individuals affected by MPS, Fabry and related conditions. We thank them for their continued support in raising awareness and vital funds for us. Well done in completing this amazing challenge!
West Highland Way Challenge
Next up is the amazing Stephan Hayes who took on the West Highland Way Challenge all in honour of Henry's Smile. He walked an unbelievable 96 miles for rare and raised £2,308 to date. He said:
It’s a privilege to help these incredible kids.
Leeds Marathon for Oliver
Julie and Chris ran the Leeds Marathon in memory of Oliver Stevens. Together they raised a fantastic £1,240. We know that this was a very emotional run and that Bob, Claire and Sam are incredibly proud of you for completing such a feat of endurance in memory of Ollie.
Bake for Rare sale for Oliver
Thank you to Sale Group in Surrey for holding a fantastic Bake 4 Rare sale in memory of Ollie. Thanks to everyone who bought a cake and to those who made a donation, we are so grateful for your support! Karen said:
Every year we do a charity cake sale to raise money for charities. A colleague in the office mentioned yours and it has been a pleasure all the way through. It was such a great day and we managed to raise over £1,707!
Altrincham Grammar School for Girls
Altrincham Grammar School for Girls raised over £250 for their Wear It Blue Day. Thank you so much to Alicia and her Mum Selena for organising this with the school. It looked like you had a fantastic day! Thank you to the work colleagues of Selena also for donating and being so generous.
A big blue thank you goes to:
Christian Natrella and family who raised £1,000 for his 30th birthday
Abby and Ricky for raising £825 asking for donations when they renewed their vows
Rake Garden centre raised over £373 through bucket collections at the tills
Scarlett Clarke wear it blue fundraiser at Leicester Grammar School £215
Holmesdale School wear it blue day and disco organised by Olivia Vickery £250
Megan Rennoldson car boot sale £157.50
University of Surrey - Bake for rare sale by Maggi Li and students £144
St Martin's Academy wear it blue day £291 Just Giving page and bake sale
Elizabeth Mee Coffee morning £185
Zoe Birch online donations £370
Hillside Nursery wear it blue day, raffle and bake sale
The Village Nursery Bellingdon wear it blue day and cake sale
So far our amazing fundraisers have raised almost £14,500 to date! Thank you to everyone who took part and raised funds and awareness for our amazing community.
