Ria, Ahmed, Helen and Keshini share their personal and powerful reasons for volunteering with the MPS Society. From wishing to give back to the community, being part of something bigger and knowing the impact from personal experience, their stories are a reminder that volunteering isn't just about helping others but also about community and connection.
Ria
I chose to volunteer with the MPS Society because of my daughter, Jasmin, who had MPS IIIA Sanfilippo. The support we received as a family meant so much to us during an incredibly difficult time.
Volunteering feels like a way to give something back and stay connected to a community that truly understands.
Volunteering can look different for everyone but at its heart it’s about being part of something bigger than yourself. Whether it’s helping at a conference, cheering on participants at an event or supporting fundraising activities, every role plays a part in making a real difference to families affected by MPS.
For anyone thinking about getting involved, I would say it’s not just about what you give, it’s also what you gain.
There’s a real sense of purpose, connection and pride in supporting such an important cause.
You meet incredible people, hear inspiring stories and know that your time is helping to raise awareness and support families who need it. Even a small amount of time can have a big impact and you don’t need any special experience — just a willingness to help and be part of the community.
Ahmed
I first began volunteering with the MPS Society when I was in sixth form, after the charity contacted my school looking for students to help at a conference. At the time, I’ll be honest, I thought it would be a good addition to my UKAS application.
I had no real idea what to expect and I was definitely stepping well outside my comfort zone.
That first experience was completely eye‑opening. Meeting families, listening to their stories and seeing first‑hand the impact MPS has on their lives gave me a new perspective. Although I was nervous, I thoroughly enjoyed the experience and found it incredibly rewarding.
By the end of the conference, my reasons for volunteering had changed. It was no longer about my application but about being part of something meaningful and making even a small difference.
That single experience stayed with me and I kept coming back to volunteer again and again. What started as a one‑off opportunity has turned into a commitment that has now lasted 19 years.
Helen & Keshini
Get involved
While childcare support is not required regularly but as needed during conferences and larger events, you can find out about all currentvolunteering opportunities here.
