Hello, I'm Imogen. My work experience at the MPS Society was a very special opportunity, as I hope to become a paediatric nurse in the future. I was especially interested to learn more about children living with MPS and related metabolic conditions.
During my placement, I spoke to staff about the support families may need and learned about genetic counselling from one of the team. I then created a one-page summary on MPS III, highlighting key information and met with the communications team to see how it could be designed as a part of an MPS Society resource. I also had the chance to meet the wider team and CEO Bob Stevens.Â
Volunteering in the past
I did my volunteer work experience here because my mum has worked for the charity for 24 years, so in many ways I feel like I have grown up with the MPS Society.
I feel like I have grown up with the MPS Society.
I have been looking through past MPS Society magazines, which was lovely, as I found mentions of my family throughout the years. From my birth to visits with my siblings, I have had many opportunities to support and volunteer with the Society. I have volunteered at a range of events, including bake for rare, the 40th anniversary challenge and other fundraising activities. During Covid, I also took part in online activities to help families stay connected and engaged.
Being able to be part of events and activities has helped me understand the important role the MPS Society has in supporting individuals and families.Â
