MPS Society provides useful resources. We are always adding new information so come back regularly to see what we've posted.
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Understanding MPS II Hunter disease
We know that being diagnosed with a rare disease is life-changing and you can struggle to come to terms with it. Therefore, we have...
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Focus on Fabry: living with Fabry and coronavirus
First Fabry patient webinar focussing on Fabry and coronavirus is today at 4pm.
Be prepared: emergency information for admission to hospital
Emergency information for admission to hospital that you should have to hand.