In series 2 of ITV's Living with Dementia documentary, Ross Kemp meets the Mills family to talk about 5-year-old Penny who has MPS III Sanfilippo. Seeing how the family are dealing with the changes in Penny and thinking about her future is both heartwarming and heartbreaking in equal doses.
You can watch the episode via the ITV Hub here.
You can find more information about MPS III Sanfilippo and our other MPS and related diseases on our website. If you need help or support please get in touch with our Support and Advocacy Team.