See all the latest news, blogs and updates from the medical sector.
NICE update on the re-evaluation for the treatment of MPS IVA (Morquio A)
NICE (The National Institute of Clinical Excellence), the drug decision making body in England, have publicly released an update today (2...
February Fundraiser of the Month - Towersey Morris Men and the Haddenham Mummers
For our 40th anniversary this year, we have decided to have a 'Fundraiser of the Month'. This month, we have The Towersey Morris men and...
AVROBIO ends its gene therapy trial for Fabry disease
We are sad to announce that the pharmaceutical company AVROBIO has made the difficult decision to deprioritize its gene therapy trial for...
Think Rare, Think MPS
The Society for Mucopolysaccharide Diseases (MPS Society) is committed to bringing about change in the diagnostic journey of children...
Hannah's story - The Big Give Christmas Challenge 2021
Hannah tells us why support services from the MPS Society are so important and how you can double your donation to fund them this Christmas.
NICE leans towards a no for the treatment of MPS IVA (Morquio A)
NICE (National Institute of Clinical Excellence), the drug decision making body in England, have publicly released their interim decision to
Hunter Outcome Survey
The latest Hunter Outcome Survey (HOS) for 2020 has been released. We hope that this report will help patients and caregivers who are...
Back to school photos
Thank you to everyone who sent their back to school photos in after we put out an ask on social media last week. Here are the ones we've...
MPS Society’s Group CEO elected to the ABPI’s new Patient Advisory Council
We are thrilled to announce that our Group CEO, Bob Stevens, is one of the eight leaders from across the patient and health charity...
Rareminds: MPS Society counselling launch
We are pleased to launch our new counselling service at the MPS Society for patients and family members.