MPS Society provides useful resources. We are always adding new information so come back regularly to see what we've posted.
The COVID-19 vaccine and Inherited Metabolic Disease: what you need to know
An expert panel addresses questions and concerns relating to the vaccines for those with an IMD.
Fabry International Network Newsletter - December 2020
The latest newsletter from the Fabry International Network (FIN) is now available. A word from the President Dear All The last newsletter...
Latest information for clinically extremely vulnerable adults and children
Information and guidance for clinically extremely vulnerable adults and children
Fabry Findings - Issue No. 4 - Autumn 2020
Findings from research conducted with the Fabry community by Rare Disease Research Partners on behalf of the Fabry International Network.
Focus on Fabry: Fabry treatment update webinar
This webinar for Fabry patients and their families provides information about available interventional studies, who is eligible for them.
Take part in the highly important LSD Collaborative survey which closes soon
In this short clip Dr Tom Kenny, CEO of Rare Disease Research Partners (RDRP) urges you to take part in the highly important LSD...
Impact report 2019/20
In the latest edition of our new-look newsletter you can read about the impact our supporters have helped us to make in 2019.
Big Blue Bake Off Fundraising Pack
Everything you need to hold your own Big Blue Bake Off event.
Mental health and emotional wellbeing
This session was created in response to questions we asked our young adults about what type of advice or information they would like access.
MPS and COVID: expert advice for patients and families
MPS and COVID webinar for patients and their families.
Bob's top tips on surviving lockdown
Bob Stevens, Chief Executive of the MPS Society and father to two teenage boys with MPS II Hunter, shares his tips for surviving lockdown.
Fabry International Network Newsletter - June 2020
The latest newsletter from the Fabry International Network (FIN).
Laboratory investigations of MPS diseases
A video lecture on what happens from a laboratory point of view when it comes to making a diagnosis for MPS diseases.
Focus on Fabry: living with Fabry and coronavirus
First Fabry patient webinar focussing on Fabry and coronavirus is today at 4pm.
Inherited Metabolic Disease and Coronavirus (COVID-19) Webinar – 11 June 2020
The second webinar in this series focuses on how those affected by inherited metabolic diseases may be impacted by the coronavirus outbreak.
Top tips on homeschooling
Gordon Harvey, MPS Society Trustee and father, shares his top tips on homeschooling.
Implications of the Coronavirus Act 2020 for adult health and social care services
Steve, is here to fill you in on the key points of the Coronavirus Act 2020 and the particular implications on adult health and social care.
Coping with your family's psychological health
Right now this might feel like a particularly stressful time and so it's really important to look after our psychological health.