MPS Society provides useful resources. We are always adding new information so come back regularly to see what we've posted.
Update on the Heart: Cardiac Involvement in Anderson-Fabry Diseas by Dr Ravi Vijapurapu
Focus on Fabry - Expert and Patient Meeting 2019 Update on the Heart: Cardiac Involvement in Anderson-Fabry Disease by Dr Ravi Vijapurapu...
Update on the Kidneys by Dr Shabbir Moochhala
Focus on Fabry - Expert and Patient Meeting 2019 Update on the Kidneys by Dr Shabbir Moochhala Consultant Nephrologist at Royal Free...
Gap year, "Uni" and Transition - Anything is possible by Louis Garthwaite
MPS National Conference 2019 Gap year, "Uni" and Transition - Anything is possible by Louis Garthwaite Young adult perspective
Gene therapy for MPS? by Derralynn A Hughes
Focus on Fabry - Expert and Patient Meeting 2019 Gene therapy for MPS? by Derralynn A Hughes Lysosomal Storage Disorders Unit, Royal Free...
Gene Therapy for MPS by Derralynn Hughes
MPS National Conference 2019 Gene Therapy for MPS by Derralynn Hughes Lysosomal Storage Disorders Unit, Royal Free London NHS Foundation...
How your information can lead to future treatments by Jacqueline Adam
MPS National Conference 2019 How your information can lead to future treatments by Jacqueline Adam Clinical and Communication Lead at MPS...
Transition - Clinician perspective by Uma Ramaswami
MPS National Conference 2019 Transition - Clinician perspective by Uma Ramaswami Consultant Paediatrician, Lysosomal Disease Department,...
Update on treatment by Tarekegn Hiwot
Focus on Fabry - Expert and Patient Meeting 2019 Update on treatment by Tarekegn Hiwot Consultant in Inherited Metabolic Disorders,...
Variable Presentations in Female Fabry Patients by Atul Mehta
Focus on Fabry - Expert and Patient Meeting 2019 Variable Presentations in Female Fabry Patients by Atul Mahta Consultant Haematologist...
Portacaths - To Port or Not to Port by Dr Fiona Stewart
MPS National Conference 2019 Portacaths - To Port or Not to Port by Dr Fiona Stewart Consultant in Medical Genetics, Clinical Genetics at...
Inheritance
A guide to understanding the pattern of inheritance in MPS and related diseases including Fabry.
Carpel Tunnel, signs, symptoms and how to treat
MPS National Conference 2019 Carpel Tunnel, signs, symptoms and how to treat by Carla Baldrighi, Andrea Jester Hand and Upper Limb...
How the world of digital may help us to better understand impact of disease for patients
MPS National Conference 2019 How the world of digital may help us to better understand impact of disease for patients by Christian...
Importance of Sleep Studies
MPS National Conference 2019 The Importance of Sleep Studies by Dr James Davison Consultant in Paediatric Metabolic Medicine at Great...
Managing difficult behaviour
MPS National Conference 2019 Managing difficult behaviour by Daniella Vandepeer Mum to Caleb MPS II Hunter Syndrome
Radiological Abnormalities in the skull and spine for MPS I
MPS National Conference 2019 Radiological Abnormalities in the skull and spine for MPS I by Esmee Oussoren Metabolic Paediarician, Center...
Small molecules and scissors; an overview of current treatments and latest trial results
MPS National Conference 2019 Small molecules and scissors; current treatments and latest trial results by Dr Maureen Cleary Consultant...
Understanding the changes in the Brain
MPS National Conference 2019 Understanding the changes in the Brain by Annapurna Sudarsanam Paediatric Neurologist at Birmingham...