MPS Society provides useful resources. We are always adding new information so come back regularly to see what we've posted.
Evolving mental health needs in lysosomal storage disease communities | Findings from the UK LSD Collaborative surveys
This project shares insights on the evolving mental health challenges faced by individuals with lysosomal storage conditions through surveys conducted by the LSD Collaborative in the UK.
Mental health and wellbeing videos for children - anxiety and children
These videos were developed following a series of anxiety workshops for children. The videos invite children to manage their anxiety as...
Mental health and wellbeing videos for teens - dealing with anxiety
These videos were developed following a series of anxiety workshops for young people. The videos invite our members to manage their...
Top tips to combat loneliness
We know that living with MPS, Fabry or a related disease can feel daunting and you may feel lonely and isolated. We all feel lonely from...
Mental health and wellbeing videos for adults - dealing with anxiety
A series of seven videos aimed to help you deal with anxiety, stress and worry. Diana Thornton is a counsellor and mindfulness teacher...
Mental health and wellbeing videos for adults - managing anxiety
The videos invite our members to manage their anxiety as well as techniques to build resilience. Diana Thornton, who runs the workshops,...
Mental health and emotional wellbeing
This session was created in response to questions we asked our young adults about what type of advice or information they would like access.
Coping with your family's psychological health
Right now this might feel like a particularly stressful time and so it's really important to look after our psychological health.
10 tips for taking care of yourself during lockdown
Claire, parent of children with MPS, doctor and mindfulness teacher has produced a short video giving tips on self-care during lockdown.