See all the latest news, blogs and updates from the medical sector.
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Naomi tells us how she's not letting Fabry, or the lockdown, get in the way of future dreams
It's Fabry Awareness Month and like many people living with Fabry Disease Naomi is finding ways to stay positive and motivated
22/04/2020
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Myles shares his experience travelling to the land down under
Myles who has MPS I writes Travel about his experience travelling with an MPS condition and offers some helpful tips and advice. Why...
14/01/2020
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Naomi's story
My name is Naomi, I am 20 years old and I have Fabry disease, which I was diagnosed with when I was 10.
04/12/2019
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Oliver's story
I was diagnosed with MPS VI in 1999 when I was just 4 years old. At this time there was no cure or treatment to help slow down the progression of the disease but with research largely funded by the MPS Society a treatment was developed.
04/12/2019
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Joanne's story
Joanne was diagnosed with MPS IV Morquio when she was 3. She is now 26 and the intervening years have been a roller-coaster of emotions and experiences.
