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Latest

See all the latest news, blogs and updates from the medical sector.

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Story

Oliver's story

I was diagnosed with MPS VI in 1999 when I was just 4 years old. At this time there was no cure or treatment to help slow down the progression of the disease but with research largely funded by the MPS Society a treatment was developed.

04/12/2019

Story

Joanne's story

Joanne was diagnosed with MPS IV Morquio when she was 3. She is now 26 and the intervening years have been a roller-coaster of emotions and experiences.

01/12/2019

Story

Oliver and Sam

Oliver and Samuel are brothers and they both have MPS II Hunter disease because their bodies are missing a special enzyme.

01/12/2019

A young girl with MPS I Hurler sits in a pink pram with her knees tucked into her chest and an open smile on her face.

Story

Miya's story

Miya has MPS I Hurler disease, here her mum shares her story from a rocky start to her diagnosis thanks to an orthopaedic doctor who spotted her symptoms might be part of something greater.

01/12/2019