See all the latest news, blogs and updates from the medical sector.
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Sheryl's story - The Big Give Christmas Challenge 2020
I’m Sheryl and I'll be supporting the Big Give Christmas Challenge because MPS Society events are important at every stage of your journey
17/11/2020
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Sam's story - The Big Give Christmas Challenge 2020
Sam is 18 living with ML III and for him, the family events meant connecting with others who understand what he's going through.
09/11/2020
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Shielding, shopping and PPE - one family's story of their time in lockdown
The Brentnall family sent us this uplifting story about how they coped whilst shielding with their vulnerable son, the challenges they...
25/09/2020
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Back to school - making the right choice for both my daughters
Imtiaz, father of Anya who has MPS III Sanfilippo, shared his family's experience of returning to school this term and the difficult...
21/09/2020
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Overcoming all fears when transitioning to higher education
We caught up with Aisha Seedat who graduated from university this year.
10/09/2020
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Pre-lockdown school trip to New York City
In this blog post, we talk about Hannah’s exciting school trip to ‘The Big Apple’ earlier this year. Hannah is 17 years old and has MPS...
03/09/2020
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MPS lockdown diaries
We’re delighted to share some wonderful poetry, personal stories, birthday celebrations and more from our unique pandemic perspective.
03/09/2020
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Mucolipodosis awareness – international conferences from a family perspective
Shirley shares her story of meeting other families with ML in the UK and abroad in 2019.
05/08/2020
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Catherine's journey to sustainability through beauty and fashion
Having an MPS condition hasn't stopped Catherine from finding ways to make a difference to the world.
27/04/2020
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Naomi tells us how she's not letting Fabry, or the lockdown, get in the way of future dreams
It's Fabry Awareness Month and like many people living with Fabry Disease Naomi is finding ways to stay positive and motivated
