See all the latest news, blogs and updates from the medical sector.
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Steven's story - Fabry Awareness Month
This Fabry Awareness Month, we are featuring a range of articles from guest bloggers describing their relationship with Fabry disease....
31/03/2022
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Living life with MPS IVA - Joanne's inspirational story
Joanne was diagnosed with MPS IVA Morquio when she was three years old and her mother Judith Evans, one of our lovely trustees opens up...
09/03/2022
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Why Amy is a unique lady
Amy Cooper, from Hampshire, is 35 years old and has MPS I Hurler. She is one of the few people who underwent a Bone Marrow Transplant at...
28/02/2022
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January Fundraiser of the Month - Marina and Friends
We were so sorry to hear that Marina passed away in January 2023, our thoughts go out to her family. Marina accomplished so much for the...
04/01/2022
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Lucy's story - The Big Give Christmas Challenge 2021
Lucy tells us why support services from the MPS Society are so important and how you can double your donation to fund them this Christmas.
23/11/2021
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Dan's story - The Big Give Christmas Challenge 2021
Dan tells us why support services from the MPS Society are so important and how you can double your donation to fund them this Christmas.
15/11/2021
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Jorden's story - The Big Give Christmas Challenge 2021
Jorden tells us why support services from the MPS Society are so important and how you can double your donation to fund them this Christmas.
09/11/2021
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An interview with Isabelle
Isabelle Clarke is the sister of Lilia Clarke who was recently diagnosed with MPS III. Here, she shares her story about Lilia's diagnosis.
02/11/2021
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Lexie's story
Lexie's sister Tillie Mae has MPS IIIA. Here, she shares her story about what it's like growing up with a sister who has a rare disease....
21/05/2021
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A year in lockdown
With the world slowly opening up again, the Brentnall family are coming to terms with lockdown easing and normal life resuming. Here,...
