See all the latest news, blogs and updates from the medical sector.
Overcoming all fears when transitioning to higher education
We caught up with Aisha Seedat who graduated from university this year.
Pre-lockdown school trip to New York City
In this blog post, we talk about Hannah’s exciting school trip to ‘The Big Apple’ earlier this year. Hannah is 17 years old and has MPS...
MPS lockdown diaries
We’re delighted to share some wonderful poetry, personal stories, birthday celebrations and more from our unique pandemic perspective.
Mucolipodosis awareness – international conferences from a family perspective
Shirley shares her story of meeting other families with ML in the UK and abroad in 2019.
Catherine's journey to sustainability through beauty and fashion
Having an MPS condition hasn't stopped Catherine from finding ways to make a difference to the world.
Naomi tells us how she's not letting Fabry, or the lockdown, get in the way of future dreams
It's Fabry Awareness Month and like many people living with Fabry Disease Naomi is finding ways to stay positive and motivated
Myles shares his experience travelling to the land down under
Myles who has MPS I writes Travel about his experience travelling with an MPS condition and offers some helpful tips and advice. Why...
Naomi's story
My name is Naomi, I am 20 years old and I have Fabry disease, which I was diagnosed with when I was 10.
Oliver's story
I was diagnosed with MPS VI in 1999 when I was just 4 years old. At this time there was no cure or treatment to help slow down the progression of the disease but with research largely funded by the MPS Society a treatment was developed.
Joanne's story
Joanne was diagnosed with MPS IV Morquio when she was 3. She is now 26 and the intervening years have been a roller-coaster of emotions and experiences.