See all the latest news, blogs and updates from the medical sector.
Story
Pre-lockdown school trip to New York City
In this blog post, we talk about Hannah’s exciting school trip to ‘The Big Apple’ earlier this year. Hannah is 17 years old and has MPS...
03/09/2020
Story
MPS lockdown diaries
We’re delighted to share some wonderful poetry, personal stories, birthday celebrations and more from our unique pandemic perspective.
03/09/2020
Blog
Get baking with The Big Big Blue Bake Off
Video tutorial and virtual ideas for a baking challenge to support The Big Blue Bake Off.
19/08/2020
Blog
MPS has talent - the MPS Society talent show
MPS has talent is the MPS Society talent show which this year has been put together using videos sent in by our members.
12/08/2020
Story
Mucolipodosis awareness – international conferences from a family perspective
Shirley shares her story of meeting other families with ML in the UK and abroad in 2019.
05/08/2020
Blog
Treats For All
We provided vouchers to families and individuals as a one-off gift to help offer some relief during a stressful time.
05/08/2020
News
Using UK Personal Child Health Records (Red Book) to investigate early indicators of MPS disorders
This study provides insights into early indicators of MPS disorders by using parent-held child health records of children based in the UK.
05/08/2020
News
Ross Kemp's Living With Dementia series visits a family affected by Sanfilippo
Ross Kemp meets the Mills family to talk about 5-year-old Penny who has Sanfilippo.
31/07/2020
Blog
Have your say to improve services for ultra-rare diseases
If you are affected by an ultra-rare disease we need your help to make support change and improve your care and services.
