See all the latest news, blogs and updates from the medical sector.
Blog
Louise's story - The Big Give Christmas Challenge 2020
Meeting families in person has supported my learning about these conditions and my understanding about the challenges families face.
23/11/2020
Story
Sheryl's story - The Big Give Christmas Challenge 2020
I’m Sheryl and I'll be supporting the Big Give Christmas Challenge because MPS Society events are important at every stage of your journey
17/11/2020
Story
Sam's story - The Big Give Christmas Challenge 2020
Sam is 18 living with ML III and for him, the family events meant connecting with others who understand what he's going through.
09/11/2020
News
Kelly Mills' charity appeal for MPS Society on Radio 4
Thank you so much to everyone who donated to the Radio 4 appeal after hearing Kelly talk about her daughter, Penny, and her experience of...
04/11/2020
Blog
So what does clinical trial support services actually mean? Lianne from RDRP reveals all
From clinical trials support and specialist medical communications to research and real-world evidence, Rare Disease Research Partners...
09/10/2020
Condition
AVROBIO announce collaborative research agreement with Manchester university for MPS II gene therapy
AVROBIO announce collaborative research agreement with Manchester university for MPS II gene therapy.
04/10/2020
Condition
REGENXBIO announces expansion of gene therapy programme for the treatment of MPS II
REGENXBIO have released an update on the progress of their investigational gene therapy programme for MPS II Hunters disease.
02/10/2020
Story
Shielding, shopping and PPE - one family's story of their time in lockdown
The Brentnall family sent us this uplifting story about how they coped whilst shielding with their vulnerable son, the challenges they...
25/09/2020
Story
Back to school - making the right choice for both my daughters
Imtiaz, father of Anya who has MPS III Sanfilippo, shared his family's experience of returning to school this term and the difficult...
21/09/2020
Blog
Back to school - September 2020 brings mixed emotions for our families
After many months of parents across the country tasked with teaching their children from home, our families have shared their back to...
