See all the latest news, blogs and updates from the medical sector.
News
Conference 2021 Announcement
Dear friends, The COVID-19 pandemic has brought with it unprecedented challenges to the world we live in. For those affected by rare...
19/04/2021
Story
Gunner's story
Gunner has recently been diagnosed with MPS I Hurler. His mum, Holly, tells MPS Society about Gunner's diagnosis. Update 07 June 2021:...
16/04/2021
Blog
Look into my eyes and ask, "could it be Fabry?"
This Fabry Awareness Month, we are featuring a series of articles titled “Could it be Fabry?” from guest blogger Loretta MacInnes, a...
15/04/2021
Blog
Could it be Fabry? The beginning
This Fabry Awareness month we are featuring a series of articles titled “Could it be Fabry?” from guest blogger Loretta MacInnes, a Fabry...
08/04/2021
News
National Lottery Community Fund award £195K to build connections and reduce feelings of isolation
Creating community, connection and peer-support for children, young people and families affected by MPS and related diseases. As we know,...
12/03/2021
News
Inspirational author from Ireland
Geraldine, a determined MPS mother and writer, has published a book sharing her experience and insight into raising a child with a severe...
22/02/2021
Story
Facing all obstacles and striving for a career of my choice
Faye, who lives with MPS IV Morquio, has overcome many hurdles to find accessible opportunities which allowed her to find the job role...
29/01/2021
News
MPS Society welcomes new UK Rare Diseases Framework
MPS Society welcomes new UK Rare Diseases Framework, a national vision to improve the lives of those living with rare diseases.
22/01/2021
Blog
Lockdown positivity
We asked you what you're doing to keep positive and stay healthy during lockdown this time round. The COVID-19 pandemic has affected...
15/01/2021
Condition
Treatment for Metachromatic Leukodystrophy (MLD) approved by the European Commission
MLD is a very rare, fatal genetic disorder caused by mutations in the ARSA gene which lead to neurological damage
