See all the latest news, blogs and updates from the medical sector.
Blog
At home self-infusions - Carers Week 2021
In early June, the #CarersWeek campaign is celebrated annually online to bring awareness to challenges unpaid carers face and to...
03/06/2021
Condition
New COHERE study for MPS II patients
A study is currently being undertaken by the COHERE team at the Royal Manchester Children’s Hospital. ‘COHERE’ is an abbreviation of Core...
27/05/2021
Condition
Phase I/II clinical study to explore the potential of ST-920 investigational gene therapy to treat
Below is a patient newsletter from biotechnology company Sangamo about their Fabry gene therapy trial. The STAAR Study is Recruiting...
25/05/2021
News
MPS Society's chance to win £1,000
MPS Society are asking for nominations to win a £1,000 Movement for Good award from Ecclesiastical Insurance Group. MPS Society is...
24/05/2021
Story
Lexie's story
Lexie's sister Tillie Mae has MPS IIIA. Here, she shares her story about what it's like growing up with a sister who has a rare disease....
21/05/2021
Story
A year in lockdown
With the world slowly opening up again, the Brentnall family are coming to terms with lockdown easing and normal life resuming. Here,...
07/05/2021
Blog
Could it be Fabry? A response
Commentary by Professor Atul Mehta, formerly Director of the Lysosomal Diseases Centre, Royal Free Hospital and University College London...
27/04/2021
Blog
We welcome Mandy who has started a brand new role at the MPS Society
Mandy Carey, Head of Project Delivery at the MPS Society, explains her past experience and current plans. I am delighted to have joined...
23/04/2021
Blog
What's new for Sophie?
Sophie Thomas, our Senior Head of Patient Services and Clinical Liaisons explains her change in role at the MPS Society and new work with...
23/04/2021
Blog
Could it be Fabry? A plea from the heart
This Fabry Awareness month we are featuring a series of articles titled “Could it be Fabry?” from guest blogger Loretta MacInnes, a Fabry...
