See all the latest news, blogs and updates from the medical sector.
Blog
We welcome Mandy who has started a brand new role at the MPS Society
Mandy Carey, Head of Project Delivery at the MPS Society, explains her past experience and current plans. I am delighted to have joined...
23/04/2021
Blog
What's new for Sophie?
Sophie Thomas, our Senior Head of Patient Services and Clinical Liaisons explains her change in role at the MPS Society and new work with...
23/04/2021
Blog
Could it be Fabry? A plea from the heart
This Fabry Awareness month we are featuring a series of articles titled “Could it be Fabry?” from guest blogger Loretta MacInnes, a Fabry...
22/04/2021
News
Conference 2021 Announcement
Dear friends, The COVID-19 pandemic has brought with it unprecedented challenges to the world we live in. For those affected by rare...
19/04/2021
Story
Gunner's story
Gunner has recently been diagnosed with MPS I Hurler. His mum, Holly, tells MPS Society about Gunner's diagnosis. Update 07 June 2021:...
16/04/2021
Blog
Look into my eyes and ask, "could it be Fabry?"
This Fabry Awareness Month, we are featuring a series of articles titled “Could it be Fabry?” from guest blogger Loretta MacInnes, a...
15/04/2021
Blog
Could it be Fabry? The beginning
This Fabry Awareness month we are featuring a series of articles titled “Could it be Fabry?” from guest blogger Loretta MacInnes, a Fabry...
08/04/2021
News
National Lottery Community Fund award £195K to build connections and reduce feelings of isolation
Creating community, connection and peer-support for children, young people and families affected by MPS and related diseases. As we know,...
12/03/2021
News
Inspirational author from Ireland
Geraldine, a determined MPS mother and writer, has published a book sharing her experience and insight into raising a child with a severe...
22/02/2021
Story
Facing all obstacles and striving for a career of my choice
Faye, who lives with MPS IV Morquio, has overcome many hurdles to find accessible opportunities which allowed her to find the job role...
