We are truly delighted to welcome you to our first MPS Conference since 2019, a long-awaited opportunity for our community of families, individuals and professionals to come together once again.
This year’s conference marks a fresh chapter. Inspired by the invaluable feedback from our MPS community, we’ve reimagined the programme to better reflect your hopes, needs and voices. Whether you are joining us as someone living with an MPS condition, a parent, a sibling, a carer, a clinician, or a researcher, this is your conference.
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How to get there
When: 27 June, 5pm - 29 June, 1pm
Where: DoubleTree by Hilton Coventry, Paradise Way, Walsgrave Triangle, Coventry CV2 2ST
Overview
This weekend is about more than the medical journey, it’s about community, connection and shared strength.
Friday 27 June
| 15.00-20.00 | Arrival & Registration (Foyer) |
| 18.00-20.00 | Buffet dinner (Minster 1 & 2) |
| 19.30-20.00 | Welcome to MPS Matters (Minster 1 & 2) |
| 20.00-21.30 | Children's party (Minster 1 & 2) |
Saturday 28 June
| 07.30-9.30 | Breakfast (Restaurant) |
| 09.10-18.30 | Conference programme |
| 18.30-23.00 | Dinner and entertainment (Minster 1 & 2) |
Sunday 29 June
| 07.30-10.30 | Breakfast (Restaurant) |
| 9.20-12.40 | Conference programme |
| 12.40-13.00 | Closing remarks, takeaway lunch and departure |
Childcare programme
We’re excited to be able to offer an onsite childcare and young person’s programme throughout the weekend, supported by our amazing team of volunteers.
Saturday 28 June
| 8.50 | Children and young people dropped off | Canterbury, first floor |
| 10.30 | Break | Stay with volunteers, first floor |
| 12.30-13.30 | Lunch | Parents to collect and return after lunch |
| 15.45 | Break | Stay with volunteers, first floor |
| 17.00 | Children and young people collected | |
| 18.30 | Dinner and activities |
Creation station (arts and crafts open all day)
Cinema and games rooms
Sensory room
Quiet / chill out zone
Entertainer / party (15.00-17.00)
Sunday 29 June
| 09.00 | Children and young people dropped off | Canterbury, first floor |
| 10.30 | Break | Stay with volunteers, first floor |
| 13.00 | Children collected |
Wild Science (10.00-12.00)
Cinema and games rooms
Sensory room
Quiet / chill out zone
Arts and crafts
Photography and filming policy
For the protection of everyone attending please make sure that any images or videos taken at the conference are for personal use (unless you have the express permission of the people in the photo) and are not uploaded to the internet, posted on social networking sites or openly shared in other ways. Some attendees have not given permission for photos to be taken and we are all responsible to ensure the privacy of others is upheld.
During the weekend we will be taking photographs, videos and recordings of some of the sessions. Please let us know if you do not want any images of you to be shared in the following ways:
On our website
On our social media channels
In our publications
In digital communications
In marketing for future events
To make sure we don’t use your photo in these ways, please visit us at the check-in desk so we can identify you.
General enquiries
For general enquiries, please speak to Barbara. For anything specific about childcare arrangements speak to Steve. If you’re unable to speak to someone in person or need urgent help, please call.
Get social
When you share your experiences of the weekend on your social channels, remember to use #MPSMatters2025