See all the latest news, blogs and updates from the medical sector.
AVROBIO announce collaborative research agreement with Manchester university for MPS II gene therapy
AVROBIO announce collaborative research agreement with Manchester university for MPS II gene therapy.
REGENXBIO announces expansion of gene therapy programme for the treatment of MPS II
REGENXBIO have released an update on the progress of their investigational gene therapy programme for MPS II Hunters disease.
Back to school - September 2020 brings mixed emotions for our families
After many months of parents across the country tasked with teaching their children from home, our families have shared their back to...
Tune in to Kelly Mills' charity appeal for MPS Society on Radio 4 this month
Tune in to hear Kelly's appeal for MPS Society on Radio 4 this month.
Get baking with The Big Big Blue Bake Off
Video tutorial and virtual ideas for a baking challenge to support The Big Blue Bake Off.
MPS has talent - the MPS Society talent show
MPS has talent is the MPS Society talent show which this year has been put together using videos sent in by our members.
Treats For All
We provided vouchers to families and individuals as a one-off gift to help offer some relief during a stressful time.
Using UK Personal Child Health Records (Red Book) to investigate early indicators of MPS disorders
This study provides insights into early indicators of MPS disorders by using parent-held child health records of children based in the UK.
Ross Kemp's Living With Dementia series visits a family affected by Sanfilippo
Ross Kemp meets the Mills family to talk about 5-year-old Penny who has Sanfilippo.
Have your say to improve services for ultra-rare diseases
If you are affected by an ultra-rare disease we need your help to make support change and improve your care and services.