See all the latest news, blogs and updates from the medical sector.
A tribute to Simran Bhachu (16 Sept 1994–5 July 2019)
A tribute to Simran Bhachu
Testing times - maintaining specialised laboratory testing under COVID-19
Professor Simon Heales and Dr Derek Burke of the Enzyme Unit at Great Ormond Street Hospital describe their journey through COVID-19 and...
Brain disease treatment shows promising signs
Early results for a potentially revolutionary brain disease therapy given under compassionate use to a two-year-old has shown promise.
7 ways to have fun in MPS Awareness Week
For this installment of the #WednesdayWebinarSeries we are giving you ideas on how to have fun as part of our MPS Awareness Week campaign!
Rainbows
We asked our community to send in their rainbows so we could show our appreciation to NHS staff and other health workers.
Paediatric advice on clinical support and homecare (updated 26 March)
Paediatric clinical advice on homecare and clinical support (currently under revision).
Key points from coronavirus webinar hosted by The Worldwide Hospice Palliative Care Alliance
WHPCA webinar on coronavirus and people with serious conditions and underlying health issues
Changes to our service as a result of COVID-19
Due to the changing situation with the COVID-19 outbreak the MPS Society (including RDRP) has taken the decision to close our offices and...
MPS Society response to Budget announcement
Following Rishi Sunak's Budget speech, the chief executive of MPS Society has released a statement concerning funding for rare diseases.
Neglected diseases - letter to The Times
Heads of more than 35 charities have written to The Times to ask NICE that rare diseases get fair and equal access to treatment.