See all the latest news, blogs and updates from the medical sector.
News
Changes to our service as a result of COVID-19
Due to the changing situation with the COVID-19 outbreak the MPS Society (including RDRP) has taken the decision to close our offices and...
16/03/2020
News
MPS Society response to Budget announcement
Following Rishi Sunak's Budget speech, the chief executive of MPS Society has released a statement concerning funding for rare diseases.
11/03/2020
News
Neglected diseases - letter to The Times
Heads of more than 35 charities have written to The Times to ask NICE that rare diseases get fair and equal access to treatment.
02/03/2020
Condition
Vimizim re-evaluation process suspended - NICE's statement and MPS Society's response
NICE have today (28 February 2020) released the following statement in regards to the re-evaluation of Vimizim under the terms of the MAA.
28/02/2020
Blog
A brief history of the MAA
This year, 2020, will bring many NICE things. In memory of the foresight of the founder of the MPS Society, Christine Lavery, we would...
26/02/2020
Blog
An interview with Louise Emerson - Specialist Speech and Language Therapist at GOSH
We asked Louise if she would answer a few questions about her work with us and our members How long have you been working at Great Ormond...
19/02/2020
Blog
An interview with Michelle Wood -Â Metabolic Physiotherapist at Great Ormond Street Hospital
We asked Michelle if she would answer a few questions about her work with us and our members. In a sentence what is your job role? I am a...
