See all the latest news, blogs and updates from the medical sector.
Blog
7 ways to have fun in MPS Awareness Week
For this installment of the #WednesdayWebinarSeries we are giving you ideas on how to have fun as part of our MPS Awareness Week campaign!
13/05/2020
Blog
Rainbows
We asked our community to send in their rainbows so we could show our appreciation to NHS staff and other health workers.
28/04/2020
News
Paediatric advice on clinical support and homecare (updated 26 March)
Paediatric clinical advice on homecare and clinical support (currently under revision).
24/03/2020
News
Key points from coronavirus webinar hosted by The Worldwide Hospice Palliative Care Alliance
WHPCA webinar on coronavirus and people with serious conditions and underlying health issues
23/03/2020
News
Changes to our service as a result of COVID-19
Due to the changing situation with the COVID-19 outbreak the MPS Society (including RDRP) has taken the decision to close our offices and...
16/03/2020
News
MPS Society response to Budget announcement
Following Rishi Sunak's Budget speech, the chief executive of MPS Society has released a statement concerning funding for rare diseases.
11/03/2020
News
Neglected diseases - letter to The Times
Heads of more than 35 charities have written to The Times to ask NICE that rare diseases get fair and equal access to treatment.
02/03/2020
Condition
Vimizim re-evaluation process suspended - NICE's statement and MPS Society's response
NICE have today (28 February 2020) released the following statement in regards to the re-evaluation of Vimizim under the terms of the MAA.
28/02/2020
Blog
A brief history of the MAA
This year, 2020, will bring many NICE things. In memory of the foresight of the founder of the MPS Society, Christine Lavery, we would...
26/02/2020
Blog
An interview with Louise Emerson - Specialist Speech and Language Therapist at GOSH
We asked Louise if she would answer a few questions about her work with us and our members How long have you been working at Great Ormond...
