See all the latest news, blogs and updates from the medical sector.
Gene therapy clinical trial for patients with MPS II Hunter opens in Manchester
A new gene therapy clinical trial for patients with MPS II Hunter disease is opening in Manchester.
NICE unfortunately leans towards a ‘no’ for the treatment of early onset LAL D (Wolman disease)
NICE (National Institute of Clinical Excellence), the drug decision making body, have publicly released their interim decision today not...
Navigating the NHS by Claire
I may seem a little obsessed, maybe I am, but when you are fighting for your life, for your health, you’ll leave no stone unturned.
They had an absolute ball
It was dancing shoes at the ready for the Winter Ball, hosted by the Scott family, on 3rd February, all in honour of their daughter...
We hear from Judith Evans
All good things come to an end…so the saying goes…..and earlier this year James Garthwaite told the Board that he wished to stand down...
Receive a gift this Christmas in our toy giveaway
We are pleased that our charity has been lucky enough to receive donations of toys and gifts that we are able to share with our community.
Christine Lavery Memorial Fund opens a call for applications for summer vacation studentships 2023
The MPS Society are delighted to announce that we are launching the Christine Lavery Memorial Fund on 21 November, Christine’s birthday,...
My good friend, Christine
Wilma, trustee of the MPS Society, mother to an MPS child and great friend to Christine, shares her memories of a special woman. I was...
Judith's memories of Christine Lavery
I hardly know where to begin with memories of Christine – there is a saying “memories are ours to treasure” and I treasure so many of my...
NICE leans towards a no for the treatment of Alpha Mannosidosis
NICE release interim decision not to recommend Velmanase alfa (Lamzede®) for alpha mannosidosis.