See all the latest news, blogs and updates from the medical sector.
Blog
My good friend, Christine
Wilma, trustee of the MPS Society, mother to an MPS child and great friend to Christine, shares her memories of a special woman. I was...
15/11/2022
Blog
Judith's memories of Christine Lavery
I hardly know where to begin with memories of Christine – there is a saying “memories are ours to treasure” and I treasure so many of my...
10/11/2022
Condition
NICE leans towards a no for the treatment of Alpha Mannosidosis
NICE release interim decision not to recommend Velmanase alfa (Lamzede®) for alpha mannosidosis.
10/11/2022
Blog
Victoria's story - The Big Give Christmas Challenge 2022
Victoria, a support and advocacy worker at MPS Society, shares her story for the Big Give Christmas Challenge.
07/11/2022
Blog
November Fundraiser of the Month - The Scott family
For our 40th anniversary this year, we have decided to have a 'Fundraiser of the Month' throughout the year. This month, we have the...
01/11/2022
Blog
October Fundraiser of the Month - Duncan Clarke
Our fundraiser of the month in October is Duncan Clarke, uncle to Lilia, who is completing a marathon a month this year.
30/09/2022
Condition
Velmanase alfa for Alpha Mannosidosis
We are delighted to announce that velmanase alfa, the ERT treatment for alpha mannosidosis has been made accessible under the Scottish...
20/09/2022
News
Bob Stevens attends the SSIEM Annual Symposium
Bob has had a busy month, attending the SSIEM Annual Symposium 2022 in Freiburg, Germany. The SSIEM, is the Society for the Study of...
20/09/2022
Blog
Fiona's epic walking challenge
One of our lovely trustees Fiona Stewart MBE, has taken on an epic challenge, walking 100km of the Camino de Santiago de Compostela in 6...
20/09/2022
Blog
September Fundraiser of the Month - Stephen McCawille
For our 40th anniversary this year, we have decided to have a 'Fundraiser of the Month' throughout the year. This month, we have Stephen...
