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Latest

See all the latest news, blogs and updates from the medical sector.

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Oke's story | The Big Give Christmas Challenge 2023

For the first time this year, we organised an Independent Adult Social Weekend at a hotel in Manchester as part of the community events we offer to our members.

Sally's story | The Big Give Christmas Challenge 2023

Meet Sally, one of our Senior Advocacy & Support Officers. She has facilitated and joined many community events and treasures the time spent together and being able to connect face to face with our members.

Today is World Sanfilippo Awareness Day

MPS III, known as Sanfilippo disease, is one of the mucopolysaccharide storage diseases.From 2010 to 2020, 83 babies were born with MPS III in the UK.

Emma's story | The Big Give Christmas Challenge 2023

Hello, everyone! I am Emma, mum to my wonderful daughter Isabella. Isabella has MPS I Hurler and we have been members of the MPS Society since 2016.

Angela's story | The Big Give Christmas Challenge 2023

Angela's story shines a light on the lasting friendships and strong support networks created through finding a place of acceptance and empathy.

Bob's rare disease road trip

Bob has been very busy over the last few weeks, as he travelled across the world to continue the all important conversation on rare diseases

Going on holiday in an MPS world

Living with MPS, Fabry or related condition can make going on holiday a daunting prospect. I am here to tell you that it's possible.

Thank you Katie and Churchill Park Academy

We would like to say a big thank you to Katie Mackelden who, along with Churchill Park Academy, raised £737.00 during MPS Awareness Week....

Navigating the NHS by Claire

I may seem a little obsessed, maybe I am, but when you are fighting for your life, for your health, you’ll leave no stone unturned.

They had an absolute ball

It was dancing shoes at the ready for the Winter Ball, hosted by the Scott family, on 3rd February, all in honour of their daughter...

We hear from Judith Evans

All good things come to an end…so the saying goes…..and earlier this year James Garthwaite told the Board that he wished to stand down...

My good friend, Christine

Wilma, trustee of the MPS Society, mother to an MPS child and great friend to Christine, shares her memories of a special woman. I was...