See all the latest news, blogs and updates from the medical sector.
Blog
Ambassador stories from the International MPS Symposium
Alison and Bethanie from the Patient Services Team were excited to be joined by our ambassadors Sam, Jacob and Helen in Florence. Together they reflect on their experience and share some core messages from the presentations they attended.
25/06/2026
Blog
Reflections from Florence: connection, hope and a global community
As an ambassador for the MPS Society, Helen recently attended the International MPS Conference in Florence. Focussed on representing our community to the best of her abilities, Helen reflects on all the highlights of her trip.
25/06/2026
Blog
Together we can transform lives
Check out our Awareness Week special, highlighting all our amazing supporters wearing it blue and raising funds for the MPS Society.
17/06/2026
Blog
A special evening with the MPS Society
In celebration of MPS Awareness Week and Fabry Awareness Month, we hosted a special evening in London focused on the future for those living with MPS, Fabry and related conditions.
11/06/2026
Blog
The power of volunteering
Ria, Ahmed, Helen and Keshini share their motivations for volunteering with the MPS Society.
02/06/2026
News
MHRA consultation on rare disease therapies
The UK Medicines and Healthcare products Regulatory Agency (MHRA) has launched a public consultation on proposed new guidance for rare disease therapies.
27/05/2026
News
MPS Society responds to key government consultations on support for children with complex needs
Over the past few weeks, the MPS Society has submitted responses to two important government consultations focused on education and support for children and young people with complex medical and additional needs.
21/05/2026
Blog
"It's good to know I'm not alone": the value of our community spaces
Our online community spaces continue to grow, with more than 200 members in our WhatsApp communities and over 300 members in our Facebook community. We asked members about their experiences and the feedback was overwhelmingly positive.
21/05/2026
Condition
Chiesi receives MHRA approval for additional dosing regimen of Elfabrio
We are pleased to share that Chiesi has received MHRA approval for an additional dosing regimen for pegunigalsidase alfa in adults stable with an enzyme replacement therapy (ERT).
14/05/2026
Blog
Equity and quality in rare conditions
Improving equity and quality of care for people living with rare conditions continues to be a key priority across health and care systems. It is encouraging to see organisations such as NICE developing clear quality standards for rare diseases.
